Lucas Camilo

Lucas’s 11-year old cousin Tya chose to draw and paint a picture of Lucas as part of an assignment at her school to honor one of her heroes. Here’s what she wrote, followed by the amazing picture:

My cousin Lucas is my hero. He’s one of the most inspiring kids I’ve ever meet. Lucas was born with a disease called myotubular myopathy. The disease makes it so his body is disabled. But even though he has the disease he’s still happy and positive, and that’s why he’s my hero.

Lucas is in a wheelchair with stickers on it . He has a tube connected to his neck that connects to a machine. The tube makes it’s so Lucas can breath well*. Without the tube it would be very hard to breath. Lucas is one of the smartest kids I know, the thing about Lucas is if he wants to know about something he studies about it hard. Lucas’s favorite thing to learn about is dinosaurs. He reads and watches so much about dinosaurs. I know nothing about dinosaurs so I always have to ask Lucas about them. Lucas also has really good jokes. Like two months ago we were a my grandma’s celebrating Lucas’ birthday. We were all talking to Lucas and he made a really funny joke. I don’t remember the joke. I just remember it was really funny!

* When Tya read her piece to Lucas yesterday he remained quiet the whole time except to exclaim after the part about his vent tube allowing him to breath… “and talk!”