Summer Camp! (June 23)

camp4 After quite a bit of hype, summer camp started today.  It was a very warm day by Seattle June standards (upper 70s!), and the campers were ready.  As soon as we got to camp, Lucas answered the counselors’ sweet “What’s your name?” with “you want to feed the bunnies!”  With a little translation we explained what Lucas was saying (and coaxed him into saying his name).  One of the many great things about the Seattle Children’s Playgarden is that they are very into kids being self-directed in play.  So if Lucas wanted to feed the bunny, a counselor was going to help him find bunny food and locate a bunny.  Lucas was thrilled.

Camp officially kicked off with circle time (also good news for Lucas – this is his favorite part of the school day).  I (Krista) left Lucas with the other campers and his nurse, and I sat in the shade and watched.  God bless camp counselors.  These people were overflowing with enthusiasm for the flowers, sunny days, songs about squirrels, and the rules.  (There are two.  Rule number one: Stay inside the fence.  Rule number two: Have FUN!)

When they got to singing the call-and-response “A Boom-Chica-Boom” I burst into tears.  I didn’t know that I had stored that song deep down in the bank of happy-summer-camp memories, but apparently its been there since the last time I sang it, probably as a camp counselor 20 years ago.  Just a few days ago I was feeling really down about Lucas’s limitations.  And then today, here he is, getting to experience a version of my own happy childhood memories.  But even better, maybe.  He’s in a camp that is very explicitly welcoming to kids of all abilities and disabilities, with counselors who are new to this but full of enthusiasm for including kids like Lucas.  Like I said, God bless the camp counselors.

I left, and returned four hours later — a longer day than hiscamp1 school day, and all outside.  I expected to find him lying alone in the grass.  But no!  He had rested, but he was up, sitting with two counselors and one kid.  One of the guys was strumming a guitar softly, while the other one read a story about a bat to Lucas and the other camper.  These counselors and so young and sweet, I almost burst into tears again as the guy reading held the book up so Lucas could see the pictures.  He held the book way too low for Lucas to actually see, but I resisted jumping in immediately because Lucas looked so pleased.  (I learned later that Lucas had insisted that the counselor keep reading.)

I didn’t have the camera out for the pictures of the bunny feeding, but I’ll get those before the week is over.

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23rd June, 2014 This post was written by admin 1 Comment

Graduasaurus (June 19)

photoYesterday was Lucas’s last day of preschool, and it was the culmination of a pretty spectacular school term.  This spring Lucas has made big strides in his own unique way.  He’s been able to read big words and count and sort shapes and colors forever.  But over the past couple months he’s gained physical stamina so that he can participate more fully in the full school day, shouting out answers in circle time and singing along with his classmates with more volume.   Of course we don’t get to see all that, but we have our eyes (his nurses) who report back to us each day about his remarkable energy at school, even on the days he hasn’t slept much.  And what we get to see is a kid bubbling with excitement as he gets off the school bus.  He’s sometimes so excited to tell us about his day that he’s trying tell us three things at once all as the lift is still lowering him down off the bus.

And after a year of rough starts and set-backs with his power-chair driving (he works on learning to drive 2-3 times a week at school with his physical therapist, Joan), these past few months he has been making major progress.  Krista was able to go a few times to watch, and Lucas showed off the skills he’s been mastering – driving through doorways, following directions, and most importantly stopping.  Of course it’s still at a tortoise pace, and he still enjoys crashing his “tank” into the wall a little too much,  but other than that he’s mastered driving.  He even knows his right and left and will navigate based on directions.  Lucas beamed with pride when Krista told him that he did his best driving ever.  Of course he still hasn’t sorted out his pronouns, so he replied with an enthusiastic “you did your best driving EVER!,” talking about himself.

A few weeks ago we got the news that Lucas did get a spot at Orca, the public K-8 school near our home that we picked out as our top choice for Lucas.  We’re really excited to have Lucas going to a school in the neighborhood, and we’re excited about the staff we’ve met so far.  It feels like the right decision, but it made graduation day from Lowell extra sad.  The staff at Lowell, where Lucas could have stayed for elementary school, loves Lucas so much.  He spends almost as much time with his therapy team – Joan, Kim, Terri, and Elspeth – as he does with his teacher, and all them have gotten to know and appreciate Lucas so much, and they have gone out of their way to help him.

Screen Shot 2014-06-19 at 3.08.57 PMLucas, never one for nostalgia or transition anxiety, happily told everyone that he was graduating from preschool, that he would be a kindergartner next year, and that he’d be going to Orca.  No big deal.

The graduation ceremony was beautiful in the way any group of 3-5 year olds trying to act in a coordinated way is amazing.  A teacher played pomp and circumstance on the cello as the kids walked, waddled, and wheeled in to the cafeteria.  They sat on the stage and sang three songs, and a few of them couldn’t help but get up and spin around, or do a couple belly flops, or cry.  Lucas apparently belted the songs out in the rehearsal, but with a cafeteria full of parents and grandparents watching through their smart phones, Lucas got stage fright and barely mumbled his way through the songs.   And when his teacher presented him with his certificate, he cried.

Every day before Lucas leaves the house for school he picks an animal to take, and he clutches it most of the day.  Yesterday was no exception, so he was holding his zebra. After a hug did little to console him, his nurse showed him how his zebra was nibbling on his ear, and things got better.  And then Lucas got a present (“you want to open it!!!”) from his physical therapists, and he was thrilled to see it was a Dr. Seuss book.  And pretty soon he was back to making jokes.  One of his favorites lately is to turn anything into a dinosaur name (“librarianasaurus,” or “silly-a-saurus.”)  So yesterday he beamed as he called himself the “Graduasaurus”.


Created with flickr slideshow.
19th June, 2014 This post was written by admin 9 Comments

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Feminist Fathers Day (June 16)

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Lucas’s cousin Tya dressed me up as Princess Penelope for Father’s Day

Krista was sick with a stomach flu over the weekend so Lucas and I got to spend a lot of time together.  I couldn’t have asked for a better father’s day gift than getting to spend extra time with Lucas (though I could have done without the calls of “daddy, daddy!” in the middle of the night and the multiple trips back and forth to his room when he couldn’t get back to sleep at 4 am.)

I don’t put a lot of stock in holiday’s like Father’s Day so I was all ready to do my usual downplaying… and then I saw the challenge from two inspiring dads, Chris Crass and Tomas Moniz, “to make this Father’s Day a Feminist Fathers’ Day and for dads, papas, bapas and all parents along the masculine gender spectrum to embrace feminism and resist misogyny in our families and society.”  fathersday2014_3I encourage you to read their whole article in Truthout and think about the list of 50 ideas/actions at the end of the article (compiled from lots of different people) to help bring feminism to the heart of our families.  Some of these apply more to kids that are older than Lucas, and some our hard to imagine in the context of Lucas’s disability.  But a lot of it resonates.  As you can see from a couple pictures in this post, I was particularly inspired by #4.

There’s no doubt that feminism has brought profound, positive change to our society, and then men/dads have also benefited greatly from those changes.  There’s also still urgency around combating the worst aspects of patriarchy, highlighted by the viscous misogyny of the Isla Vista killings, and the defensive response by men to the justifiable rage of #yesallwomen.

I’ve long considered myself a feminist but it was actually a good challenge to think about how I apply that political stance to my parenting.  Partly it’s a challenge because when it comes to Lucas I can’t imagine doing things any other way.   Of course I want to be engaged in my son’s life, and I  do my best to be an equal parent in all aspects of our family: from providing care to doing housework to staying on top of appointments to playing games in the park.  This is not to say Krista and I always managed to avoid taking on more gendered parent roles; for example, I tend to be more involved in our finances while Krista has been more engaged in getting everything in order for Lucas’s school transition… and, she’s more into shopping for his clothes :)  But we talk about it all together and try to even things out if it gets too skewed.  I remember a couple years ago when it got really hot outside and I went to the thrift store to by Lucas some tank tops, acknowledging that it wasn’t my favorite thing.  I came away with some sweet, frilly, flowered shirts that I was quite proud of — thereby encouraging Lucas to mess with gender norms at the same time!

Challenging the rigid gender binary seems like an important aspect being a feminist dad.  I’m down with dressing Lucas in pink or putting flowers in our hair or going grocery shopping (the latter has become one of our favorite things to do together of late) in part because I want to show him that it ok for guys to do all that stuff.  It’s better than ok!  Perhaps most importantly, I like to give Lucas kisses and demonstrate my love for him.  In some ways, the fact that he has a disability makes this piece more pronounced — I can be very protective of Lucas and when we’re public places and I feel alienated at how he’s being excluded because of his disability my reaction is to cuddle him close to me and show the world how much I love this wonderful little boy.

If some of this feels a little self-promoting or self-important… well, it probably is.  And as Tomas and others have pointed out in the pages of Rad Dad magazine, there is a certain contradiction in constantly celebrating our efforts to be good, feminist fathers even as we try to undermine the tendency of men to dominate.  So let me say too that I realize that I have a lot of work to do around this.  Part of the reason I wanted to write something about feminist Father’s Day is because I still struggle being more open and in touch with my feelings when it comes to being part of a family… indeed, like many cis-gendered men I’ve been conditioned to be emotionally aloof and it’s a lot of work to unlearn that.  But I’ve had some good role models… like my own dad, who found ways to be very engaged despite a grueling job, and then also worked hard to unlearn aspects patriarchy and sexism that were ingrained in him by our society.

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My family (minus a sick Krista) on Father’s Day 2014

As Chris Hayes lays out in his Father’s Day commentary from a year ago, “this is the great gift of feminism to men: it took a sledge hammer to the most stultifying parts of patriarchy including a vision of fatherhood in which dads were expected to be distant, stoic, removed creatures from their kids’ lives.”

(Note: I can’t believe I just wrote about my dad “unlearning patriarchy” on Lucas’s blog.  He’ll get a kick out of it, though, especially since I followed it up with a quote from Chris Hayes, his favorite progressive commentator.)

In the end, I decided not to participate in the #feministfathersday social media frenzy yesterday, in part because I pledged that as part of my commitment to be a radical dad, I would stay off of email and social media for a whole day (!)  But Krista posted the picture of me wearing a tiara and earrings with my arm around Lucas (at the top of the post) and whatya know, it got lots of likes on Facebook.  Alas, I fared better than others who tweeted powerful feminist messages about parenting throughout the day and were slammed but the sexist, misogynist Twitter trolls, who only managed to reinforce our point.  I guess I should be grateful that Lucas’s blog doesn’t have any haters who post rude comments…

Anyway, here are some tweets from a few stellar feminist dads I know.  Happy late feminist Father’s Day!

 

 

 

16th June, 2014 This post was written by burke 2 Comments

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