Lucas Camilo

During a recent appointment with the ENT (Ear, Nose and Throat doctor) we learned that Lucas has some major fluid buildup in his ears, and that surgery to place tubes in both ears would be the best solution to the problem.  Back in February Lucas had a hearing test that showed mild to moderate hearing loss, but the test was also somewhat inconclusive because Lucas puked all over the place half way through it (in fact, it was the day before his hospitalization for low sodium).

It was somewhat of a relief to hear that his bad hearing – supposedly equivalent to the muddled sound of being under water – is likely due to this fluid buildup, and we were also encouraged to hear that there was a rather simple solution to the problem.  Surgery is never fun (Lucas has already had two surgeries, for his tracheostomy and gastrointestinal feeding tube) but this one sounds relitively harmless.  Still, Krista has been researching osteopathy and cranio-sacral therapy and there may in fact be alternatives to the surgery.  Ultimately we’re anxious to help Lucas improve his hearing and dealing with the excess eardrum fluid will be a big step forward.

We also want to take a moment today to give a special congratulations to our friends Daniella and Gabe who gave birth to a beautiful little boy on Friday.  Rafael or “Rafi” arrived early like Lucas, and he was even smaller when he was born (less than 3 pounds!)   Rafi also got his mom’s last name with dad’s last name placed in between, a good tradition if you ask us :)  And we hear that he’s doing great, wiggling around and already starting to eat.  We know from experience that spending the early days of your baby’s life in the neonatal intensive care unit is not an easy thing, nor is it easy to have to wait to hold your baby, so we’re sending lots of love and solidarity to New Haven.  We (Lucas included) can’t wait to meet little Rafi!