Lucas Camilo

It turns out that Lucas is even happier than we are to be home.  After a somewhat rough night that had us wondering if we had brought Lucas home too early from the hospital — and nervous about when the fresh supply of oxygen would be delivered by the medical supply company in the morning — the little guy had a great day today.  He was awake for hours on end, wiggling around, massaging stuffed animals, watching the flying monkeys, and sucking on his chumpy (otherwise know as the pacifier).  The oxygen concern was all for naught as Lucas’s breathing pattern improved throughout the day and his oxygen saturation level has been near 100 % since the early morning, without any supplemental oxygen.  The puffiness he had from all the IV infusions and blood draws in the hospital is nearly gone, and even his poops are back to normal.

We’ll write more information and reflections on Lucas’s muscle disease in the days to come but for now we have to admit that we’re strangely giddy.  In fact, we can kinda relate with the emotion that Lucas appears to have when he stares up at the flying monkeys — dumbfounded with joy that such a miraculous thing actually exists, marveling at the brilliant motion as if witnessing the phenomenon again for the first time.   Such it is for us looking into Lucas’s wide eyes on a good day like today.