Lucas Camilo

We finally got some breaks yesterday afternoon.  It turns out there is another medical supply company in the DC area with a pediatric home ventilator AND that will work with our insurance!  How this happened is a bit of a mystery — our doctor got involved (thank you Dr. Stone!), and our caseworker got other people high up in the hospital administration involved.  Some calls were placed, more pressure was exerted (we hear it went all the way up to the DC government), and suddenly our insurance company called and said we could rent from this new medical supply company.

The bad news is that starting over with a new supply company means more waiting.  This afternoon they’ll come by our house to assess our power supply.  It’ll take a couple more days to get us all the equipment (to be fair — it’s a long list of stuff Lucas needs), and then a couple more days to train us to use it before we can go home.  This puts Lucas’s new estimated date of release from the hospital right around his three month birthday.  It feels like a major test of our patience, but at least the news has calmed Lucas’s angry outbursts and long tirades against the health insurance industry.