Lucas Camilo

Today Lucas got lots more loving from his grandparents, while the doctors were busy paying attention to his head.  They’re worried that the fluid in his brain is continuing to build up (see previous post on “Draining fluid”), so Lucas got his head measured multiple times, then had an ultrasound, and then finally went down to the second floor for an MRI.  They’re getting ready to drain some of the excess fluid tomorrow, either through another spinal tap or by going through the soft spot on the top of his head.  It sounds scarier that it really is, but still something we’d rather avoid.  Who knew we’d ever be crossing our fingers and hoping for “just” a spinal tap?

Meanwhile, Lucas continues to receive great love from friends, old and new.  A friend he hasn’t even met yet (in fact, who we haven’t even met yet!), sent him a card and poem a couple weeks ago.  Many people have helped us put words to the challenge and wonder of Lucas’s situation, and this poem did especially well.

Lucas Camilo

Your sacred way of growing
teaches us
to free ourselves
from the limits of narrow expectations
and its gradual changes over time
and to feel, to sense
with abundant clarity
the endless possibilities
of ways to move
in this world,
of ways to move
this world

keep moving, baby
in only your way
keep teaching, baby
everyone’s listening to what you have to say