Overbearing parents (Sept. 3)
The last 2 days have seen very gradual but marked improvement by Lucas. He continues to make more spontaneous movements of his arms and legs, is taking more frequent, steady breaths over the ventilator, and has started occasionally sucking on fingers. The fact that he’s making the sucking motion has been noted as positive by the doctors, and so we’ve even had him working on a pacifier occasionally for practice (though once this is all over we’ll hide that sucker away and put on his “we will not be pacified!” onesie). He still sleeps about 95% of the time which supposedly is par for the course in preemies but can be frustrating for us since its just so much fun to see him with his eyes open. We’re trying not to become overbearing parents before he’s even a month old, so we told him that its ok to rest often and take his time getting better.
Lucas’s jaundice appears to have mostly subsided, and he’s been off the photo-therapy for a number of days. But he’s not totally out of the woods: though his overall bilirubin level is way down from a week and a half ago, and the indirect differential is also down, the direct bilirubin differential has increased over the past couple days (?!?). The neonatologist who’s taken over Lucas’s care (Dr. Stone) has used this somewhat complicated twist to test the residents during their daily rounds, and it took them a while to figure out that this could mean that something’s up with his liver or urinary tract. So they took blood for some tests yesterday and did an ultrasound of his midsection. After all the clinical mumbo-jumbo it seems most likely he’s just a little constipated (he hasn’t pooped for a couple days) so they give him a baby-suppository and hopefully that will get things moving and bring that darned direct differential down!
In the meantime, Lucas has become the most popular baby in the NICU. We barely got to hang out with him alone yesterday as there was a steady stream of visitors throughout the day: Sara W-K, Nina Randolph, Karla and Lita, Catherine, Sha and Julie… We told him that we’re going to have to get him his own Slingshot daily planner if this continues! His blog is also getting hundreds of hits a day and quite honestly we’ve been overwhelmed and humbled by the amount of interest and energy that everyone has generated towards Lucas.
Comments (8)
Chiedza Rodriguez
September 4th, 2009 at 11:10 am
Good Morning Kista,
Camilito is beautiful and I think those long fingers are perfect for a concert pianist. Lots of love for your family from CT.
:-)
Chiedza
Steve C
September 4th, 2009 at 8:20 am
Tell Lucas that his Baja California Support Group has opened and is ready for visitors. Thanks so much for posting so regularly. Don’t hesitate to ask if you need anything in the apt to make this easier. Home for ten days on 8/17.
Steve
Jocelyn
September 4th, 2009 at 12:28 am
An artist’s fingers? No, I think those deditos are perfect for shooting hoop, eh daddy? Someday, we’ll have to take Lucas, Jackson, and Arabella to that court off Avenida Washington in ES and see if they can hold their own any better than we did.
I was surprised to learn when Jackson was born that sucking is not always an easy skill, even for full term babies, so I think it’s just phenomenal that Lucas is already figuring this out. What a clever little guy! We all keep saying “baby steps, Lucas” but that sounds like a “baby leap,” eh? How exciting!
Sammie and Dan
September 3rd, 2009 at 10:12 pm
I never thought I’d say this with joy but YOUR BABY SUCKS — and that’s great news! Hope to see you this weekend! Sammie and Dan
Shaun Hubbard
September 3rd, 2009 at 5:15 pm
Go, Lucas, go! We are rooting for you up here in the far northwest corner. Love from Shaun & Harold on San Juan Island
Madden
September 3rd, 2009 at 4:42 pm
Hi Lucas-
My mommy and I have watched the video of you sucking on that pacifier five times now. We can’t believe how strong you are getting and how much more you are doing! We have decided that you look a lot like Tio…but we have yet to get a good look at your eyes which might end up looking like Krista’s.
My mommy is so excited that she gets to visit you next week.
Lots of love,
Mads
Stacy Caiarelli Brown
September 3rd, 2009 at 2:58 pm
Lucas will love reading the daily blog of your lives together some day and really appreciate all that you are doing for him right now. We keep you all in our prayers and wish for Lucas’ continued improvement. xoxo Jeff, Stacy, Jenay & Riley
ST
September 3rd, 2009 at 11:09 am
Now I understand the earlier post about his long fingers and feet — these have to be the longest baby fingers ever – I think you have an artist in the family (or another one).
Soooo glad to hear good news of Lucas. There are many west coasters rooting for him.
Leave a reply